JULIANA SALDARRIAGA A Piece of Pie [s2If is_user_logged_in()]DOWNLOAD PDF [/s2If] [s2If current_user_can(access_s2member_level1)] [/s2If] In this paper we challenge an assumption about caregivers of chronic patients that we’ve repeatedly encountered in our ethnographic fieldwork: that of the inherently and permanently resilient caregiver, or a person that, driven by feelings of affection for the chronic patient, will remain strong regardless of the challenges posed by the healthcare system or the disease itself. We describe three deeply rooted beliefs that explain why this assumption is still widespread within healthcare systems: the belief in caregiving as female calling, or the fact that women are assumed to have not just a biological advantage, but an interest in caregiving, the belief in individuality, or the fact that individuals are thought to have a preexisting and inalterable identity, and the belief in the pathological origin of mental illness, or the fact that we tend to ignore structural causes and social determinants...

An EPIC Talk with SELENE CAMARGO CORREA and JULIANA SALDARRIAGA, A Piece of Pie [s2If current_user_can(access_s2member_level1)] Approx 80 min [/s2If] [s2If !is_user_logged_in()] Please sign in or become an EPIC Member to access video. [/s2If] [s2If current_user_is(subscriber)] Become an EPIC Member to access video. Learn More. [/s2If] Overview Ongoing digital transitions, punctuated by erratic responses to the COVID pandemic, are changing how we approach health care as a service and business. This volatile moment invites the design of original and imaginative solutions: we are transitioning to a new patient-centric era that challenges us to embrace physical distancing and technological-driven schemes. Ethnographic analysis can demonstrate which initiatives are truly relevant for patients and help bring them closer to their physicians. This talk will walk through examples of patients, healthcare organizations, the pharmaceutical industry, and scientific associations teaming up to redefine what patient-centered...

JULIANA CARDONA A Piece of Pie JULIANA SALDARRIAGA A Piece of Pie MARIA FERNANDA ESTUPIÑAN A Piece of Pie PAULA GAMBOA A Piece of Pie [s2If is_user_logged_in()] Download PDF [/s2If] [s2If current_user_can(access_s2member_level1)] [/s2If] Case Study—In this case study we describe how we collaborated with a Colombian healthcare provider company and enabled its decision makers to understand the power of stories and other types of qualitative evidence in healthcare contexts. The stories became a tool for recognizing singularities in a complex, massive system, where individuals were constantly reduced to social security numbers. We describe the qualitative methods implemented, such as in-depth interviews, projective techniques, shadowings and observations, explain the difficulty in explaining the value of our qualitative evidence and mention some of the lessons learned throughout the project. We also discuss the project’s outcomes, such as understanding the difference between user perception and user experience, the impotance of healthcare...